THE RELATIONSHIP BETWEEN HEATHCARE SATISFACTION,DEPRESSION AND HOPELESSNESS LEVEL OF MOTHERS OF CHILDREN WITH CEREBRAL PALSY

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Year-Number: 2020-100
Yayımlanma Tarihi: 2020-01-13 17:39:10.0
Language : English
Konu : healthcare satisfaction
Number of pages: 477-494
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Abstract

Keywords

Abstract

The aim of this study was to examine the significance of the relationship between parent's depression, hopelessness sand healthcare satisfaction about services that their children received at the Rehabilitation Center. Thirty mothers and 30 fathers participated in the research. Beck Hopelessness Scale (BUT), Beck Depression Scale and Health Care Parental Satisfaction Scale were used to collect the data. Independent Sample T-Test and Pearson Correlation Analysis were used in the analysis of the data. As a result of the research, among parents it is found out that the depression level of primary school graduates is higher than that of high school and university graduates; the depression and hopelessness level of parents who have child at school age and adolescent is higher than parents of the preschool children; the hopelessness level of the parents whose last child diagnosed is higher than those of the parents whose first child diagnosed. Positive relationship encountered between depression and hopelessness in parents and a significant negative relationship encountered between depression, parental healthcare satisfaction, technical skill and overall satisfaction.

Keywords


  • Akkök, F. (1997). Farklı özelliği olan çocuk anne-babaların yaşadıkları, Farklılıkla Yaşamak içinde, Ed. AN Karancı, 9-21.

  • Alp, E. (2010). Serebral palsi tanılı hastalarımızın demografik, klinik ve laboratuvar özelliklerinin değerlendirilmesi. (Uzmanlık Tezi), Selçuk Üniversitesi.

  • Arslan, S. (2016). Examination of interactional behaviours between of fathers and children with autism spectrum disorders. (Master Degree), Anadolu University, Eskişehir.

  • Atagün, M. İ., Balaban, Ö. D., Atagün, Z., Elagöz, M., & Özpolat, A. Y. (2011). Kronik hastalıklarda bakım veren yükü. Psikiyatride Güncel Yaklaşımlar, 3(3).

  • Avşaroğlu, S., & Gilik, A. (2017). Özel gereksinimli çocuğa sahip anne-babaların kaygı durumlarına göre umutsuzluk düzeylerinin incelenmesi. İlköğretim Online, 16(3).

  • Aytaç, D. (2017). Clinical evaluation of autism diagnostic criteria. (Master Degree), Uskudar University, İstanbul.

  • Bahar, A., Bahar, G., Savaş, H. A., & Parlar, S. (2009). Engelli çocukların annelerinin depresyon ve anksiyete düzeyleri ile stresle başa çıkma tarzlarının belirlenmesi. Fırat Sağlık Hizmetleri Dergisi, 4(11), 97-112.

  • Bailey Jr, D. B., & Simeonsson, R. J. (1988). Assessing needs of families with handicapped infants. The Journal of Special Education, 22(1), 117-127.

  • Beck, A. T. (1963). Thinking and depression: I. Idiosyncratic content and cognitive distortions. Archives of general psychiatry, 9(4), 324-333.

  • Beck, A. T., Ward, C. H., Mendelson, M., Mock, J., & Erbaugh, J. (1961). An inventory for measuring depression. Archives of general psychiatry, 4(6), 561-571.

  • Beck, A. T., Weissman, A., Lester, D., & Trexler, L. (1974). The measurement of pessimism: the hopelessness scale. Journal of consulting and clinical psychology, 42(6), 861.

  • Can, T. (2010). Reliability and Validity of Turkish Version of Bakas Caregiving Outcomes Scale. (Doctoral Thesis ), Pamukkale University, Denizli.

  • Ceylan, R. (2004). A study on depression and hopelessness levels of mothers with handicapped child participated in integration education and not. (Doctoral Thesis), Ankara University, Ankara.

  • Çoban, M. (2007). The evaluation of the satisfaction of parents applying to the Istanbul University Faculty of Medicine General Outpatient Pediatric Service. (Doctoral Thesis), İstanbul University, İstanbul.

  • Çullu, E. (2012). Çocuk ortopedisi. İstanbul: Ege Basım.

  • Demiral, B. (2016). Determination of mothers of children with cerebral palsy orthopedic care initiatives before and after load. (Master Degree), Bahçeşehir University, İstanbul.

  • Deniz, E. (2005). Cerebral Palsy’nin Tanımı. In H. Özcan (Ed.), Cerebral Palsy (pp. 47-57). İstanbul: Boyut Yayın Grubu.

  • Durak, A., & Palabıyıkoğlu, R. (2006). Beck Umutsuzluk Ölçeği Geçerlilik Çalışması. Kriz Dergisi, 2(2), 311-319.

  • Fırat, S. (2000). Anxiety, depression, alexitmia and general psychological assesment of mothers of autistic and mentally retarded children. (Yüksek Lisans), Çukurova Üniversitesi Adana.

  • Fontaine, K. R., Manstead, A. S., & Wagner, H. (1993). Optimism, perceived control over stress, and coping. European Journal of personality, 7(4), 267-281.

  • Garne, E., Dolk, H., Krägeloh-Mann, I., Ravn, S. H., Cans, C., & Group, S. C. (2008). Cerebral palsy and congenital malformations. European Journal of Paediatric Neurology, 12(2), 82-88.

  • Given, B. A., Given, C. W., & Kozachik, S. (2001). Family support in advanced cancer. CA: a cancer journal for clinicians, 51(4), 213-231.

  • Gölalmış Erhan, G. (2005). Investigation of hopelessness, pessimism, social support sense and future plans of mothers who have mentally retarded children. (Master Degree), Ankara Univeristy, Ankara.

  • Gürbüz, S., & Şahin, F. (2014). Sosyal bilimlerde araştırma yöntemleri. Ankara: Seçkin Yayıncılık.

  • Hisli, N. (1989). A reliability and validity study of Beck Depression Inventory in a university student sample. Turkish Journal of Psychology, 7(23), 3-13.

  • İnci, F. H. (2006). Validity and reliability of the turkish version of the burden interview. (Master Degree), Pamukkale University, Denizli.

  • Işıkhan, V. (2005). Türkiye’de zihinsel engelli çocuğa sahip annelerin sorunları. Ankara: Hacettepe Üniversitesi Yayınları.

  • Karadağ, G. (2014). Özel Gereksinimi Olan Çocuğa Sahip Ebeveynlerin Yaşadığı Zorluklar ve Çözüm Önerileri. TAF Preventive Medicine Bulletin, 13(6).

  • Kasuya, R. T., Polgar-Bailey, M. P., & MPH Robbyn Takeuchi, M. (2000). Caregiver burden and burnout a guide for primary care physicians. Postgraduate Medicine, 108(7), 119.

  • Korkmaz, R. (2007). Comparison of depression and alexithymia levels of mothers with normal developing and autistic children. (Master Degree), Üsküdar University, İstanbul.

  • Küçüker, S. (1997). The effects of an informational counseling program on nonhandicapped siblings knowledge level about mental disability and attitudes toward their brothers or sisters with mental disabilities. (Doctoral Thesis), Ankara University, Ankara.

  • Lima, S., Niemeyer, S., & Carson, J. R. (1998). Caregiver education guide for children with developmental disabilities. Maryland: Aspen Reference Group.

  • Marco, E., Duarte, E., Santos, J., Aguirrezabal, A., Morales, A., Belmonte, R., . . . Escalada, F. (2010). Loss of quality of life in family caregivers of stroke patients: An entity to be considered. Revista de calidad asistencial: organo de la Sociedad Espanola de Calidad Asistencial, 25(6), 356-364.

  • Miller, F. (2005). Cerebral Palsy. Wilmington, DE: Springer.

  • Mutlu, A., & Günel, M. K. (2010). Değişikli özür seviyesindeki serebral palsili çocukların annelerinin depresyon düzeyleri farklı mıdır? Yeni Tıp Dergisi, 27(2), 87.

  • Öksüz, Z. (2008). The comparison between some psychological and psychiatric parameters of the families who have autistic and normal children. (Master Thesis), Marmara

  • Raina, P., O'Donnell, M., Rosenbaum, P., Brehaut, J., Walter, S. D., Russell, D., . . . Wood, E. (2005). The health and well-being of caregivers of children with cerebral palsy. Pediatrics, 115(6), 626-636.

  • Richter-Kanık, N. (1998). The effect of early intervention on stress level of mothers of young children with down syndrome, and on mother-child interaction. (Doctoral Thesis), Ankara University, Ankara.

  • Rivera-Navarro, J., Benito-León, J., Oreja-Guevara, C., Pardo, J., Dib, W., Orts, E., & Belló, M. (2009). Caregiver Quality of Life in Multiple Sclerosis (CAREQOL-MS) Study Group Burden and health-related quality of life of Spanish caregivers of persons with multiple sclerosis. Mult Scler, 15, 1347-1355.

  • Sankar, C., & Mundkur, N. (2005). Cerebral palsy-definition, classification, etiology and early diagnosis. The Indian Journal of Pediatrics, 72(10), 865-868.

  • Smith, T. B., Innocenti, M. S., Boyce, G. C., & Smith, C. S. (1993). Depressive symptomatology and interaction behaviors of mothers having a child with disabilities. Psychological reports, 73(3), 1184-1186.

  • Toseland, R. W., Smith, G., & McCallion, P. (2001). Family caregivers of the frail elderly. Handbook of social work practice with vulnerable and resilient populations. New York: Columbia University Press.[http://www: aoa. gov/carenetwork/fcfe. html].

  • Ulus, B. (2004). Evaluation of parent satisfaction who had taken health care services from İhsan Doğramacı Children Hospital. (Doctotral Thesis), Hacettepe University, Ankara.

  • Urhan, G. (1998). The Effect of presence of child with cerebral palsy on family functions and social services. (Master Thesis), Hacettepe University, Ankara.

  • Varni, J. W., Seid, M., & Kurtin, P. S. (1999). Pediatric health-related quality of life measurement technology: a guide for health care decision makers. Journal of Clinical Outcomes Management, 6, 33-44.

  • Young, M. A., Halper, I. S., Clark, D. C., Scheftner, W., & Fawcett, J. (1992). An item-response theory evaluation of the Beck Hopelessness Scale. Cognitive Therapy and Research, 16(5), 579-587.

  • Zastrow, C. (2013). Sosyal Hizmete Giriş (B. Çakar, Trans.). Ankara: Nika Yayınevi.

                                                                                                                                                                                                        
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